Nothing Else Matters

Why Lived Experience Matters

January’s theme is Method and Madness. This is all about how we think, write and speak. What does it matter? Where are our minds? And what can madness, a part of my personal lived experience and theoretical framing, lend to method? This month’s theme is all about setting the mood for the year.

On the first week of the month I explore lived experience. This is not a memoir, but it does involve delving into memories - it is an opportunity to reflect on where I am situated, who I am, and how my writing grows out of - and intertwined with - what I experience.

Open mind for a different view
And nothing else matters
— James Hetfield, Metallica

Metallica’s iconic ballad ‘Nothing Else Matters’, includes lots of lyrics which hint to the importance of lived experience. The irony is that the song’s composer, James Hetfield, was concerned about the vulnerability of such a song, suggesting that it was "a huge sign of weakness" for Metallica. He reflected, "You're in Metallica. This is hardcore. What the f-ck are you doing?" Despite this, Hetfield clearly understood the importance of bringing his experiences and understandings into his writing, explaining that "It's a true testament to honesty and exposing yourself."

The tightrope between reputation and vulnerability that Hetfield describes is one I know well. Writing and speaking out of lived experience often leads to both my family and myself being subjected to violence - metaphorical, existential, and actual - which makes me wobble around on that rope, tempted to turn back, or at least insist on a safety net. And yet, I am drawn back again and again to the vital importance of honesty, and that call insists that I continue to stitch my heart onto my sleeve. 

Lived experience is rooted in standpoint theory: the idea that where you are coming from, where you are exploring a topic from, matters (read more about standpoint theory here). It’s important because, without lived experience, our knowledge gets stuck in false objectivity. In other words, we get stuck assuming that whatever the ‘average’ (or more often most privileged) person - the person with the pen, the keyboard, the doctorate, or agreement with the general consensus - experiences is true for everyone. 

Those of us who are subaltern - who differ from the norm in any way - are often let down by research which fails to take our experiences seriously. We wouldn’t know about the disability wage gap without lived experience research conducted by and with disabled people. We wouldn’t know that incidents of people being challenged about their gender in public have markedly increased since April 2025 without lived experiences research conducted by and with trans people. And we wouldn’t know that disabled trans people are more likely to experience challenges than albed trans people if not for intersectional lived experience research.

Alex Clare-Young in an accessible space on a bus. Alex is a white man with tinted brown glasses and a black and grey beard. They are wearing a blue denim jacket and a blue and white fleece as well as a beanie hat. They are sitting in a wheelchair.

I write out of lived experience. My subaltern identity characteristics include being trans - having began my transition 15 years ago -, non-binary, disabled, neurodivergent and mentally unwell. My disability - EDS - means that I am pretty much a full time wheelchair user. I am autistic. I experience chronic depression and generalised anxiety. 

I have power and privilege, too. I am white, and appear male - though this is tempered by being raised as female. I am able to access the support I need to move around an ableist world. I am happily married. I have a PhD, and a job I love. I have the time and means to engage in things I enjoy such as writing, music, and crafts. 

When I write, I try to write out of my lived experiences of being subaltern, and to point to my power and privilege where relevant. This is my story, my thoughts, my questions. 

As you read future articles, I invite you to bring to mind your identity. Do you hold subaltern identity characteristics, claimed or unclaimed? Where does your power and privilege sit? How does your identity - and/or the identities of those you care about - interact with what you are reading? Which of your lived experiences might lead you to relate to, or react against, what you are reading?

This is me. Who are you?


Beyond Binaries is a year long writing project exploring how I think about justice, equity, public life, and theology. I believe that our understandings and our opinions are inextricably linked to what we experience; the ethical, religious and social systems we live within and around the edges of; the power we have and do not have; the language and framing we hear, read and use; and the questions we keep coming back to. Whilst all of my writing tends to pay attention to those five lenses, during this project I am making that explicit by focussing on one lens each week. At the end of the month, I am also writing a monthly roundup, enabling reflection on current affairs. 
Beyond Binaries, and the other written pieces on this site, reflect my personal views and are not necessarily indicative of the views of any organisation with which I am associated. 
For writing outside of the Beyond Binaries project, go to ‘Other Topics’.